John's Reclaiming Mental Health Story

High in the branches of a maple tree, with my feet planted firmly on a large branch, I stand with my arms hugging a higher limb, looking out over the field of grass browning in the cool autumn air. The colorful red, brown, and gold leaves dance around me as the wind gently blows, bringing smells of dry decay to my nostrils as I draw a breath deep within my chest to catch every note dancing on the wind. The bark scratching the skin on my hands and arms feels drier and coarser than the summertime bark. The combination of wrestling leaves, breeze howling, and the call of crows is interrupted by my name being called, "John, what is the answer to question number three?"

My focus adjusts and a classroom comes into view once again. Desks in neat rows like cars in a traffic jam on the highway, flat walls at right angles adorned with posters highlighting sentence structure, defining prepositions, and literary quotes from supposedly great men. The air hits my nostrils again, now impregnated with that stale smell that has always made me tired, while 20+ other 17-year-olds stare at me along with a clearly frustrated Miss Der-Dolder, my high school English teacher. I must have been in the tree for several minutes because I am multiple pages behind and have no idea what the answer to number three is, not to mention the question.

As a wave of shame floods my system with the adrenaline of a cornered animal prodded by its captor, I quickly flip pages to where I see questions numbered and develop my witty response. The teacher scoffs and answers the question for me. Thankful that the pressure is off I look down at my open book and pretend to write, filled with both guilt and relief.

You see, high school English was the least interesting subject of many very uninteresting subjects in the mind of this very depressed 17-year-old male struggling with undiagnosed ADHD, who was failing school due to lack of attendance and the inability to pay attention in class.

I had been a passionate and innately curious kid. I taught myself martial arts from watching TV and practiced for hours on end. I took up archery, setting up targets in the wild Idaho land surrounding my house, and became a skilled bowman. In seventh grade, I mastered Dungeons and Dragons, studying the rule book like a research scientist. I was hungry for knowledge, but school deflated that desire.  

One of the greatest tragedies of this time in my life is that I was actually very bright and knew that something was wrong, but my attempts to explain the void I felt to school counselors and teachers only resulted in them piling on more study halls and mandatory after school catch up work. I felt trapped and misunderstood.

I was soon suspended due to lack of attendance—an ironic punishment-- and though I attempted to finish 12th grade through night school and summer school, the lack of support at home and in school led me to give up, completely overwhelmed and ashamed.

In my childhood, we normally moved two to three times a year, which meant I normally attended up to three schools a year. It was normal for my sister and me to spend hours at night hanging out in the parking lot of the Cub tavern, forbidden to leave the car until my mother finally emerged. It was normal to have a whole new cast of characters being entertained in my home at 2:30 in the morning when the bars closed, and to be threatened with violence when we asked to have the music turned down so that we could sleep because we had school in the morning. I normally witnessed violence--physical, verbal, mental and emotional. I normally felt afraid to even say sorry for fear of being hurt. My parents pulled their first all-nighter, leaving my sister and me home alone, when I was 8 years old. Later, it became normal for my mother to disappear for days or sometimes weeks.

My normal was chaos.

By age 17, with all plans to finish high school abandoned, I sunk deeper into depression. The idea of working a job to survive drained the life out of me. Kitchen work and construction seemed the only entry-level jobs I could find, and both of those environments felt hostile and unappreciative, with an “I own you” mentality.

I had moved out of my family’s home just prior to being kicked out of school and moved in with a friend who was living in a destitute shack on his grandfather's property. The Shack was built in the 1930s and was cobbled together for a 5-ft blind woman out of an old pull trailer with a classic Mickey Mouse drop pin hitch. There was no foundation and the house had settled in a couple of places and rotted in even more. There was no floor left under the bathroom sink and a frog would often shower with me as I cleaned myself in a squatting position because it was so short. After a year, I finally gave in to the idea of drinking and smoking marijuana. At first, it was uncomfortable, and I felt out of sorts and even more disconnected from myself, but I remember the night everything clicked into place, and I felt powerful, acknowledged, and seen.

Five people stand in the kitchen with a single burner of the stove on high and two knives resting in the coils of the burner glowing red hot. My roommate and I had cleaned our paraphernalia-- mainly a single utensil we called the pounder, and 64 knife hits of resin lay before us. I have the steadiest hands and the most confidence, so I am designated as what we lovingly refer to as the blade master—or Master Hall--the one who administers the hit to each person, even though I am also absolutely intoxicated. As each person steps up and inhales the smoke from the carefully prepared hits, we bear-hug each other with lungs full of smoke to increase the effect. We laugh so hard. The camaraderie and acceptance, together with the mind-numbing effects of the drugs, allow me respite from my suffering.

Who would have thought that a childhood steeped in an environment of heavy substance use and chaos and no healthy skills would make me a perfect candidate for using mind-altering drugs as a coping mechanism? I found my peers through the party network. They had lived through similar experiences and knew what it felt like to fall through the cracks of society. They accepted me and acknowledged me. I felt valued and grew to value them as my people, my friends, and my family.

But I still felt uneasy and miserable inside, and I looked for ways to escape beyond recreational drug use. Always a seeker, I studied physical disciplines, mental disciplines, spiritual philosophies diving deep into meditation and mindfulness, which gave me a great deal of clarity.

I had a few stints of sobriety lasting years, but when bigger life challenges hit-- mostly consisting of romantic relationship difficulties--I quickly returned to substance use for relief. Alcohol became my drug of choice.

At age 45, I got four DUIs in a short period of time and was sentenced to two and a half years in prison. This is when I finally surrendered. I was just so tired of feeling ambivalent, untethered, and alone. I knew I needed to ask for help and within days of receiving my fourth DUI, I entered an outpatient rehab and made a commitment to get out of my own way.

It was then, during a therapy session, that I had a healing vision: I see my adult self walk into a dark room with no windows in an old Victorian house. I recognize a child sitting on the floor in front of me, curled up in a ball, knees held close to his chest. It is five-year-old me, scared and alone. As my adult self, I step to him, pick him up, and tell him that I love him. I reach into my coat pocket and pull out a key. “This is the key that unlocks all the obstacles of the past,” I tell young John. “We will unlock them together.”

When I entered prison, I decided that this institution would be my Monastery and my University. Within the walls of my new high-security Retreat Center, I sought out any and all systems, books, and individuals who could give me answers to a lifetime of suffering and that is exactly what I found.

I met with mental health counselors and was finally diagnosed with ADHD, PTSD, and generalized anxiety disorder. I began to read and participate in groups with a true student mind while addressing my alcoholism through the AA community. Hearing the experiences of other people struggling with mental health and substance use disorder gave me a sense of belonging and hope. I worked the 12 steps with a sponsor and found great clarity and accountability in my story. This, in combination with reading and participating in groups about anxiety management, shame and self-esteem, codependency and healthy relationships, PTSD, and grief and loss gave me the coping skills that I had longed for my whole life.

Today I am more than five and a half years sober and work as a mental health group facilitator, a sponsor in the AA community, and as a peer support specialist. I have found purpose and passion in helping others understand and manage their mental health and substance use disorder. I have also changed my relationship with the past and the cards I was dealt in life. Where I once was a victim, I am now the hero of my story. Those pains that I suffered are experiences I get to share with others so that they can believe in the possibility of change. I can say with all sincerity that I would not trade my experiences for anyone else's. They have made me who I am today.

The curiosity, passion, and adventurous spirit of my boyhood have been re-awakened. Today, I focus my energies on being the best that I can be, and on helping others who are struggling. Although I still have hard days, I am stronger than I have ever been. I love myself. I trust myself. I am a receptive student of life.

About the Author

Born into the family disease of alcoholism, John Hall has been faced with generational disfunction and a lack of healthy coping skills. John struggled as a teen and young adult with depression and anxiety. His lack of knowledge about mental health led to it being untreated until his mid-40s, when John was sentenced to prison for DUIs, as he himself was self-medicating with alcohol. He used the two-and-a-half years he was incarcerated to study and better understand his own mental health and substance use disorder. Now, John helps others who are going through the journey as a peer support specialist, Nami group facilitator, prison mentor and public speaker. He believes that every moment is an opportunity to improve our lives and help one another.

The Emotional Crests and Troughs of Living with MS

By Regina Beach

I have so many feelings around living with Multiple Sclerosis (MS). There’s the grief of the life I thought I’d live that will likely never materialize. There’s the sadness of feeling helpless and incompetent at basic things, taking forever to do tasks like cooking, cleaning or getting ready for the day. I need support for the errands and minutiae of daily life that I used to take for granted. 

I also feel a lot of shame: over not making it to the bathroom in time again . . . and again. There’s the shame, (or is it regret?) of not getting my symptoms checked out when they first emerged. Would I have been able to stem the tide of profound disability with more hasty intervention? There’s also the guilt I feel for relying on my husband to take care of me. He does the lion’s share, earns the lion’s share, and takes care of the house, carefully planning with me in mind. We were barely married when I started having symptoms. I regret he only knew me for a few years in my old body that could hike and bike and run and dance. 

I have never been so aware and yet so unaware. I stepped on a shoe in the living room yesterday when I came home from physiotherapy and fell on the floor, totally unaware of my surroundings, where I was standing. I do that with my own legs; sometimes I forget they're crossed or don’t know what I’m stepping on. 

I’m also hyper aware: of the pins and needles in my feet, of the way I walk and the stares that accompany me if I’m in public on my own. I’m better able to steel myself when I’m with family or friends. I’m aware of my bladder, worry about my bowels, but awareness doesn’t always equate to control. 

I feel frustrated not knowing if I’ll have a good day or a bad one when I get up. Will I be able to walk well or hardly at all? The inconsistency is maddening and sends my type A plan-ahead brain into a tailspin of myriad eventualities to plan for: What if I feel like this? What If I need that? What if this happens? I can’t be spontaneous anymore. 

I feel anxious about the future. I know there are people who stabilize, even improve their symptoms, shrink their lesions, live with more or less benign MS, but will I be one of them? My symptoms have been with me a long time and with every passing year I feel like recovery is just that much more out of reach. Will I deteriorate? Will I need constant care? Will my cognition fail me? My aphasia worries me the most. Forgetting names of people, of companies, of household items. I love words; they have been my constant companion. Who will I be if they run out one by one? 

I also feel compassion in a way I never have before, for the elderly, those with visible and invisible disabilities, and those whose brains are wired differently. I used to be strict and unrelenting. I was in the camp of “do more, try harder, work more and surely anything will be surmountable.” I’ve softened, admitting some mountains just can’t be climbed. 

I’m grateful for the good days, the community I’m developing, and the incredibly diverse group of people MS has brought into my life. I have a global community united by technology and membership in a club no one wanted to belong to. I’ve met people all over the globe who have introduced me to a healthier lifestyle. Even if I am so sick in some ways, I’m eating better than I ever have, managing my stress better than I ever have, and thinking of myself first in ways I never have before.


I’m in a better headspace than I was a year ago. It’s been four years since I felt the first tingles in my feet. I was a real mess emotionally for a long time. Anxiety and depression are now recognized as MS symptoms and not just secondary conditions that often coexist with the disease. I used to feel a lot of bitterness and resentment toward everyone with MS who can still walk, who can hold their bladder, who has seemingly milder cases than I do, but who’s to say really what’s actually worse? 

A year ago I would have struggled to find the silver lining. My partner has lived up to his promise that we’ll still see the world, just in a different way and at a different pace. He’s promised to stick with me, even when – and perhaps especially when – I’m difficult to love. I’m sure he has a lot of emotions around MS, too. Helplessness, anger, feelings of unfairness, discomfort, but he has never been upset with me, never blamed me, never accused me of faking or exaggerating a symptom. I know others with partners who are less generous in spirit around this ever in-flux disease.

I know that my feelings will change. There are people who say getting sick was the best thing that happened to them, that they got clear on their priorities, changed their jobs, dove into their bucket list, are healthier and happier than they’ve ever been. I’m not one of them. I’m not there yet and I don’t know if I’ll ever get there. But I don’t think that they’re the toxically positive Pollyannas I use to think of them as. Now I think they truly believe what they say; maybe they have found the needle in the haystack, the diamond in the rough, made their own pitcher of lemonade. Maybe someday I will, too.

About the Author

Regina is a disabled poet and essayist. Originally from the American midwest, she now calls the Welsh Valleys home. She is the inaugural poet in residence at the Risca Industrial History Museum for 2024. Themes in her work include the arts, culture, travel, wellness and the unique people and places in those spheres. Her writing has appeared in Global PoemicBoldly Mental, The Rail, Haiku by You, Five Minutes, Visual VerseThe Horror Tree, and Disoriented among others. She is the founder of the literary magazine Lesions | Art + Words, which features the work of people living with chronic health conditions. Regina hosts Writers’ Hour and a monthly virtual open mic for the London Writers’ Salon and is the editor of the Salon’s Writing in Community anthology. She facilitates monthly writing workshops for the MS-UK charity and is the producer of the Living Well with MS podcast. Regina has written about living with disability for Overcoming MS, the MS Society, MS-UK, the Unwritten and Wales Online. Read more of Regina’s writing at reginagbeach.com or subscribe to her newsletter at reginagbeach.substack.com.

Post-Surgery Pashmina

By Martha Duncan

Ten, an important number: ten years to grow a tumor,
ten hours to cut it out.
While punctures blackened my arm,
I remembered being ten with a wart on my knee,
wanting to keep it as part of me.
Nicked open, I went away for ten hours.

I'd been away for a long time, but not like this.
Some people thought I'd been duped by a man, nabbed by a cult, or kidnapped into old age:
not johnny-on-the-spot as before, but
spouting foreign gospel,
losing my words on the phone.

Not knowing I could still
fear darkness like a child,
I went in and under the saw
and came out wondering
if my skull was still my own.

Transformed and transfixed,
not informed whose blood I used,
I woke from mists
and talked to people
as if I'd actually been there all along.
They gave me their best.

For the rest, the swishing in my head was
a scary storm, fall leaves rattling in
torrents, till the Bindu appeared,
and the nurse to rate the pain, give
pills to help me sleep or at least
slake the ache for a while.

She wrapped soft boots to massage
my clot-susceptible legs.
For the post-surgery debut,
she wound and tucked the fringe
of my pashmina scarf to cover the shave marks.
Not bad, I said, to the mirror.

The bouquet of primary colors
stood in black silhouette on
the nightstand each time I woke
to the monitor beeps
fading in and out
as doors opened and closed.

Now everything seems to be 
happening again for the first time.
I often feel I'm being re-populated
by people I've known. All my life.
I listen to their voices when I'm alone.
Add my own. Play the game, close to the bone.

About the Author

Martha Duncan was born in Fort Wayne, Indiana, and for the past forty-seven years has lived in California, Massachusetts, and Maine. She has published three chapbooks: Being and Breakfast, Just Enough Springs, and Beanblossom. She is working on two memoirs: Grocery Girl and Almost Like a Mother.

Martha’s poems have appeared in Puckerbrush Review, Aputamkon Review, and Four Zoas Night House Anthology. Her short short story "Grandmother's Funeral" was included in the I Thought My Father Was God collection sponsored by the NPR National Story Project. Recently, her poem "Abortion, 1968" was accepted by the Grandmothers for Reproductive Rights for publication on their web site. Martha has published articles on women and literacy in The Change Agent, a publication of The New England Literacy Resource Center in Boston.

Martha received a B.A. from the University of Massachusetts and an M.Ed. from Lesley College. As an adult and community educator in Boston and Sullivan, Maine, she worked for 30 years with students from U.S. and 47 other countries.

March 17, 2024 marks the 10th anniversary of Martha’s brain surgery!